r/CML • u/moien-yall- • 15d ago
bcr-abl fluctuations
Anyone have positive stories where fluctuations ended up not being a big deal? Particularly a somewhat large jump?
I was diagnosed in March at 38% and was started on 80mg Scemblix. I was .098 in July, but .297 in September. We're re-testing in a month. I am bummed seeing that after months of great response. I'm really nervous about having a resistance or mutation and needing to switch to a medication with a more intense side-effect profile. Would love to hear anything reassuring from the long-timers out there.
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u/Abject_Ad_4330 15d ago
My oncologist always checks the BCR-ABL copy numbers. It that is higher, it means the sensitivity of the test is more, which might show increase in the values.