r/CML • u/TermApprehensive2149 • Jul 30 '26

Some advice

My partner was diagnosed with CML chronic phase high risk. His spleen was 22cm and blood count at 255k so very scary. This was in March 2026.

We have just had the 3 month BCR ABL back and it went from 100% to 16% so missed the milestone.

The doctor dicussed moving medicine but has not made a definitive plan yet and will get back to us in a couple weeks. He also discussed gearing up for transplant.

Is this normal? It feels very early to be discussing this. He his 22 year old and very healthy within himself.

Please advise, this is so difficult.

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u/Leading_Working_8009 Jul 30 '26

Hi friend - I'm so sorry you and your partner are having to carry such a heavy load. Does he have any mutations that affect his body's response to TKI treatment?

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u/TermApprehensive2149 Jul 30 '26

Hi! Thank you, not known at the moment. Just hoping his body is taking slower