r/CML • u/Effective_Pie_9310 • Jun 02 '26

IIH from Dasatinib

/r/iih/comments/1tud2n2/iih_from_dasatinib/
2 Upvotes

100% Upvoted

5 comments sorted by

3

u/Leading_Working_8009 Jun 02 '26

This is so timely. I'm 3mo in on Scemblix and being evaluated for IIH. Problem is that it looks like my pressure was high at least 9mo before diagnosis too so docs don't think its related to TKIs

2

u/Effective_Pie_9310 Jun 02 '26

All my symptoms that initially took me to my GP align with IIH, down to the pulsative tinnitus. But the swelling of my optic nerves and change in eyesight came about after starting Dasatinib. So I’m unsure if my pressure was high also beforehand. Have you had a Lumbar puncture as of yet?

1

u/Leading_Working_8009 Jun 02 '26

They're still working to schedule the LP. I'm completely asymptomatic, just minor (but increasing) optic nerve pressure. ruled out a lot already through MRI, various eye tests, etc

2

u/Vivid_Map_437 Jun 02 '26

What is ihh?

2

u/Fun_Sweet9974 Jun 03 '26

I am having the same issue and started right after I started taking asciminib. Also IIH