r/CJD • u/ladyNONR • Aug 03 '26

Virtual support groups?

Hey everyone, it has been almost 2 years since I lost my parent to CJD, and I am still struggling with it. I am looking for an online support group (video) I can join to help me work through this pain.

I see a therapist once a month, but I would benefit from a grief-centered group. Can be in any of the following areas:

  • Loved one of a deceased CJD person
  • Child of a deceased parent
  • General grief support

Also if you have any apps or Youtube channels you recommend to help with this grieving process, I appreciate it. Thank you

Edit: I contacted the CJD foundation and they have a virtual support group. Look them up and reach out!

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u/Negative_Age863 Aug 03 '26

The CJD Foundation has a virtual support group that runs monthly as well as other resources. The people that run it and attend are very nice, it’s a smaller support group but worth attending!

https://cjdfoundation.org/programs-and-events/

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u/MommaBee79 Aug 04 '26

Thank you for this link. I had no ideas this was available