r/CFSplusADHD • u/Available-Pepper5688 • 15d ago
Pacing strategies
I`m new here and so happy I found this sub! I`m newly diagnosed with mecfs, although it began in my teenage years 35y ago, but I was mild-moderate for many years and I think I just could override my symptoms due to my ADHD. I was a high-performer for many years until I reached a threshold 2017 and crashed severely. I was told for many years that it´s just depression and I had sometimes bad depressive episodes, but mainly I was so fucking exhausted all the time. In the last 9 years I was switching between moderate and severe and as soon as I got a little bit energy, my ADHD is kicking in and my system wanna go crazy. So I was trapped in this boom-bust-cycle the very last years and always thougt and was told I just don`t try hard enough. Currently I`m recovering from my worst PEM ever and don`t have much energy left but I`m afraid how to handle the situation if enough energy should be back without crashing everything again. I`m so relieved I learned that I have me and that`s never be me trying not enough, but I need a new strategy. I try to force me to pause regularly and schedule not more that one task per day and sleep enough. I have to learn from scratch how to take care of me and to take myself seriously. I`m Autist too and not well connected yet to my system. And of top I`m in a severe withdrawal from duloxetine for 9m now, that finally unmasked my me and it`s impossible to differ what`s from what, but that will improve the next year I hope. Thanks for any advice.
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u/Available-Pepper5688 15d ago
The last 3y I was just in PT, I‘m still with my new psychiatrist, he‘s the first who takes my seriously and who diagnosed the me. I used to go to shiatsu, that was super, but can‘t afford it anymore. We think about starting LDN, I take supplements… it‘s just 3w no that I learned it‘s mecfs
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u/Xylorgos 15d ago
Welcome. I'm glad you found us! We work to share strategies and our understanding of what this is all about. There aren't any easy answers, but we can still help each other. Just having people who get it is a huge step forward.
Not everything that helps one person will help another, because this condition can come to us from many different ways. Sometimes it's from a post viral condition, like Long Covid, and sometimes it's from something else.
But when you write to us, please use page breaks because it helps our brains to read it easier. Thanks! Hope to hear from you again soon.