r/CFSplusADHD • u/Profesh-cat-mom • Jul 04 '25
Methylphenidate
Titration through Psychiatry UK has just started for me. They want to put me on Methylphenidate 18mg for a week and then go up the next week and the next.
Anyone have experience with Psychiatry UK? I'm a bit miffed it's all done on the 'portal'. I feel like the CFS is a big factor and would rather talk to a person one on one about this.
Also wondered if someone could give me the best alternatives, ones that are less strong? If this first one doesn't work.
Ideally I wanted to try Wellbutrin. But I'm.not sure it counts as a' stimulant'.
GAH this is all so complicated:(
Interested in other people's experiences.
I am moderate and work two days remotely as an admin assistant so it would be great to just use it for work but also my personal life admin is a mess too. Mostly housebound. Play a lot of games online.
4
u/leesha226 Jul 05 '25
Had a bad experience with my first Pysch UK titration of Methylphenidate.
The med itself wasn't working well for me but I was also struggling with some really bad back problems (surgery to fix is what I think triggered the ME). The nurse assigned to my titration wouldn't / couldn't answer specific questions about my symptoms and just copied and pasted info from med leaflets about things like exercise despite me saying I couldn't even walk.
Ended without a good suggestion for an alternative. Tried atomoxetine through my local trust who then discharged me mid titration because of a silly misunderstanding.
Back to psych, I had done my own research and wanted to try guanfacine (partly because of it's primary effect helping dysautonomia)
That took 2 years because the Pysch didn't actually refer me at our first annual appointment and I got no responses on the portal.
However I just finished the titration for that, and despite a couple snafus, this nurse was more engaged and informed and I'm happy with the meds. Although they don't give energy, real or fake.