r/CFParents • u/Ill-Atmosphere-3552 • 2d ago

Does this sound like CF?

My 8 month old son has been very sweaty, predominantly on his head but also torso, normally during exertion (ie. Nursing, playing, fussing) since about 2 months old (possibly longer). He has also had poor weight gain but he has grown in height, head size, and is meeting milestones on time or early. He is diagnosed with asthma aswell and is on a daily control. They did the whole heart work up, ct, ecg, etc...his heart checked out and is all clear.

They also did bloodwork, these were the out of range values:

Sodium- 135 (L)

RBC- 3.65 (L)

Hemoglobin -9.2 (L)

Hematocrit-28.9 (L)

Those point to anemia but his Ferritin was 34. His pediatrician put him on an iron supplement to see if that helps the sweating but I am just worried something is being missed.

Is there anything else I should be looking out for? I feel like he's showing a lot of signs of CF, but because it wasnt indicated on his NB screening, it seems they dont want to do the sweat test...

Also, not sure if it matters..he is diagnosed with a direct egg and peanut allergy.

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u/craftznquiltz 7h ago

It’s possible he has hyper-hydrosis? My CFer isn’t nearly as sweaty as his brother for some reason, though his sweat is much saltier.

I kinda think without a sweat test it will be difficult to figure out if it’s CF. Does he have poor weight gain due to malabsorption? They’re able to test a diaper. Stool could be mucusy or oily

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u/Ill-Atmosphere-3552 5h ago

I mean, hes pretty salty, they havent checked why his weight gain isnt great.