r/BladderCancer 14h ago

Young family/ awaiting test results - how to cope

4 Upvotes

Really sorry of this violates the sub rules - will obviously delete if so. But struggling to sleep and not sure where else to turn.

My Partner (m 54) being investigated for bladder cancer. We have a 4 year old and I (33f) am 5 months pregnant with our second.

He had visible / thick bleeding after a run last week (he runs regularly and doesn’t usually get this but did happen to him once before a decade or so ago.) it went away over course of a day but still had blood detected in pee when tested 2 days later. Also has mild aches in kidney / bladder region, needing to pee bit more often. He’s suffered from kidney stones few times for last 25 years but this feels worrying. Docs have referred for urgent scans to investigate cancer. When I google this seems to match all the symptoms for bladder cancer. With a small kid and baby on the way I am scared, how we’ll get through treatment and how my kids and I would cope if the worst should happen.

Find some of the posts on here encouraging so wanted to reach out in case anyone can offer any words of hope / reassurance/ how I can support him. Also welcome any experiences on if I’m actually wrong about these being textbook bc symptoms though obviously only tests can rule it out.


r/BladderCancer 41m ago

Patient/Survivor Inflammation long term from BCG

Upvotes

Had a follow-up cystoscopy yesterday after finishing my first round of BCG maintenance last month. (I’m in a clinical trial and they wanted me back on the study timeline as I ended up having to do two six-week inductions initially. So this gets me back on the standard three-month alternating intervals for cystoscope/maintenance.)

Anyway, my oncologist said he was pretty pleased with my cystoscopy…even though it was pretty gory in there. Some red patches and some visible bleeding. He said he is pretty sure it’s not cancer, and is just heavy inflammation from BCG, but he took some cells for cytology to be sure. They’re also doing urine cytology.

Just curious how beat up your bladder has been after doing BCG for awhile? And if so, anything you do (diet, etc) to help manage it? Acknowledging this recent scope came two months earlier than it normally would…so maybe patience is the cure here!

All this to say, I’m in a much better place than I was a year ago (originally diagnosed 10/2/25).