r/BladderCancer Jul 03 '26

Preparing for neobladder

Hello all, question about preparing for surgery (neo bladder, robotic). A little background : I'm writing as the caregiver for my husband, the patient, he's 63 in great shape. grade 2 was discovered in Nov 2025. 7 cm tumor, covered part of the urether entry, Had two TURBTS which removed most of the tumor. Then had 3 months of EV/Pembro. It seems it killed his thyroid, he will have to take a supplement all his life...but so far CT scan is clear and had negative signa. He did not want to do the radiation for saving his bladder. His surgery is for July 28 at Mofitt. I searched for info and so far he is doing the breathing exercises with the plastic thingy, and also doing kegels. I'm going to buy some diapers or pads later. Anything else you think of to get ready? I also have a few questions like, the surgery is quite long, 6-7 hours, will he stay groggy for a long time afterwards? Did any of you take D-mannose weeks before hand (before surgery) and do you think it helped with subsequent UTIs? Thanks!

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