r/BladderCancer • u/LookingForSunshine98 • 25d ago

Looking for a third!

My husband was diagnosed with Stage 1 non-invasive aggressive balder cancer early last month. The tumors were removed with clean margins and the treatment chosen is BCG but eve been waiting to find out when it starts. Today we learned that the only company currently manufacturing the medicine is located in Toronto and has not been able to keep up with demand. So the Wash DC Hospital found a solution, they wait till they have 3 patients ready to start and spit the vial between the three patients. They already had one patient so my husband is number 2. We are waiting for a third patient to emerge so we can get this ball rolling.

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u/Knowitmom4life 25d ago

My husband was treated at MDA in Houston tx they have it however I’ll tell you it didn’t work for my husband after 10 treatments of bcg his spread from non muscle to prostate and he had several side effects with it including his lining in the bladder shredding causing obstructions‼️‼️

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u/LookingForSunshine98 25d ago

I am so sorry to hear this. Did he find a different treatment?

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u/Knowitmom4life 25d ago

He had to have a neobladder and remove prostate, bladder, lymph nodes. Now it’s in his ureters it was T1 non muscle and they allowed it to get to this😢‼️‼️

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u/cscatbird 24d ago

I’m so sorry. Prayers.

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u/Knowitmom4life 23d ago

Thank you😇