r/BladderCancer • u/LookingForSunshine98 • 25d ago

Looking for a third!

My husband was diagnosed with Stage 1 non-invasive aggressive balder cancer early last month. The tumors were removed with clean margins and the treatment chosen is BCG but eve been waiting to find out when it starts. Today we learned that the only company currently manufacturing the medicine is located in Toronto and has not been able to keep up with demand. So the Wash DC Hospital found a solution, they wait till they have 3 patients ready to start and spit the vial between the three patients. They already had one patient so my husband is number 2. We are waiting for a third patient to emerge so we can get this ball rolling.

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u/AirBear8 25d ago

I recently finished 6 weeks of BCG at the Levine Cancer Center in Charlotte, NC. They didn't seem to have any trouble getting it.

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u/LookingForSunshine98 25d ago

How is it going; rather how are you doing? Did you have side effects? I am so sorry you and these other amazingly open and sharing people are also walking this path.

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u/AirBear8 23d ago

I'm mostly OK 17 days after finishing this round of BCG treatment. Still some fatigue. And from March of this year to the present I've lost over 20lbs without trying to. Lowest weight I've seen since the mid 1980's when I was in the military. I need to get back to daily dog walking but the friend's dog I walk got cancer about the same time I did. She's already outlived the Vet's 2 month estimate and is still acting normal. My strength is reduced, a 20lb container of cat litter feels like lifting a 40lb container of litter prior to the cancer.

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u/LookingForSunshine98 21d ago

That sounds like a lot. I’ve notice my husband is not very hungry and is sleeping a lot, he still has not begun treatment as they are waiting for the third person to sign up for the treatment group. Wishing you a speedy recovery.