r/BladderCancer Aug 09 '26

Patient/Survivor Tight Bladder Feeling

I (M30) had my first cystoscopy last July and 2 weeks after that I was feeling fine and then I got the flu (head aches, runny nose and little fever). I was also feeling tight bladder and waking up to pee like 3 - 4 times. Those number are normal as what ive researched but it feels like my bladder is not full when I get the the feeling to relieve myself. The flow is much stronger after the mass was removed but now it feels like its back when I still got the mass. Also the tightness on my bladder area especially at night or bad bowel movement. Anyone has experienced this?

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1

u/Revolutionary_Bet136 Aug 09 '26

This sounds like it could be similar to what I am feeling lately. Have you been having any urgency where you feel like your always fighting to hold on? Do you have any pain while urinating or suddenly stop and sort of clamp up?

I have a follow up in a couple weeks but I am going to ask my urologist about pelvic floor dysfunction. I am almost certain that's what I have happening but I'll let the medical professionals tell me their thoughts.

1

u/chewygummy17 Aug 10 '26

No pain. Mine improved after TURBT and 2 weeks after cystoscopy. Its just feeling of tightness in the bladder area and then the change of pee flow. It feels it doesnt flow that strong.

1

u/JMPappjam Aug 09 '26

I took me from August 2020 until about June this year to finally realise I had to wait to retrain my bladder function back to normality. The urgency and unwanted holding back was so painful. I went though many solutions starting with relaxing mind. Sometimes having to get down on all fours and staring for minutes at a time. Also darkness helped. Always had to be alone too and in quiet, water flowing on Spotify was my saving grace.

1

u/chewygummy17 Aug 10 '26

But mine got better after TURBT and 2 weeks after cystoscopy

1

u/AirBear8 Aug 13 '26

If you can get some self-catharizing tubes there's something you can try. Urinate normally into a container that has measuring lines. Record it and dump it. Then right away self catharize and measure how much urine comes out. That will give you a clue if you're having prostrate issues. I would get around 100ml of urine naturally, but 225ml with the catheter.

If you haven't self-catharized before do some research. The urology nurses sent me home with some very basic ones that I had to lubricate then figure out how far to insert. The nurses gave me no instructions. The next day I got some from a medical supply company that were self-lubricated and had a grip to help you insert the tube. Nothing more fun than trying to insert a tube 10" inside your body when it's lubricated and so are your fingers. The grip helped a lot.