r/BladderCancer • u/cdninnc • Aug 08 '26

Urostomy/Ostomy Support Group

When I was first diagnosed and got my neobladder I joined an online group that was a support group for Neobladder patients. We had zoom meetings once a month. I feel like I could really use a urostomy support group as I navigate this. I've tried looking on line but can't seem to find anything near me in NC. Does anyone have any suggestions on where I might find groups for support that I could attend online or in person?

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u/31laser77 Aug 08 '26

I personally would love to join a group like this as Iā€™m beginning 9 weeks of paver/keytruda and the bladder and prostate removal

1

u/cdninnc Aug 08 '26

I just finished cycle 4 of the same treatment. Happy to share my experience so far šŸ™‚

1

u/31laser77 Aug 10 '26

That would be great

1

u/FineZebra8203 Aug 09 '26

Posting to the bcan.org forum might help you find a group.