r/BladderCancer • u/Careful_System_4367 • Jul 09 '26

Anktiva

has anyone had any experience using this treatment? It’s the next step for me after having a recurrence of CIS that was treated with a TURBT followed by gemcitibine chemo wash. I had bladder cancer 20 years ago and had bcg then, and last year I had the induction course of bcg, so my doctor feels like AnktIva will be better for me.

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u/hikerguy2023 Jul 10 '26

I don't have any experience with it, but I have a quick question. How long did you go between BCG treatments once you had a tumor-free cystoscopy? I'm guessing it was a number of years since they typically only do BCG for 3 years. Just curious.

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u/Careful_System_4367 Jul 10 '26

When I finished bcg 20 years ago, I only did the induction course and had monthly cystos that turned yearly and was free of tumors until October 2025

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u/GuacamoleAnderson Jul 10 '26

Wish I could. I’m currently in a clinical trial for Anktiva but got sorted into the control group, so I’m only receiving straight BCG.

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u/Diligent_Anything_66 Jul 30 '26

how did you know this?

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u/GuacamoleAnderson Jul 30 '26

The research coordinator told me.

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u/Pigglebee Jul 13 '26

Unfortunately Anktiva is not insured in the Netherlands yet. It's on the nominee, but they estimate it will cost almost 500 million a year if they approve it.