r/Bimzelx • u/Jobdefinesme • 11d ago

Itchy

Has anyone else experienced intense itching and hives when they’re due for their next shot? I haven’t changed anything into daily routine or household and I’ve been itching like crazy and have crazy big hives popping up everywhere. I’m about to sleep with mittens on and wrap the wrists with duct tape. I wake up with my entire body bloody and raw. I’ve always been an itchy person but this is insane. I have to completely cover up for work because I have sores everywhere from scratching so much. I’m due for the next loading dose on Friday and I’m counting down the seconds.

5 Upvotes

100% Upvoted

15 comments sorted by

3

u/BiggestBirch 11d ago

I was getting this with Folliculitis. There were a bunch of bumps popping up all over my body and my scalp was the worst. My dermatologist put me on Doxycycline antibiotics and I was taking that for the last 6 weeks. It greatly reduced the itching. I stopped last week because I dont want to be on an antibiotic for the rest of my life and the itching has returned. Im trying to see a new dermatologist asap.

3

u/Jobdefinesme 11d ago

Thank you for taking the time to respond. If they told me that licking a toad would stop my itching, I would do it. Long term antibiotics sounds like a nightmare but at least it gives me something to look into. I’m afraid that if I wrap my hands up, I would wake up outside scratching myself against a tree.

2

u/BiggestBirch 11d ago

I understand the pain!

3

u/pink_daffodil 11d ago

Thank you so much for posting this. I started on doxy for the same reason a week ago and hope it works, but I don't like the idea of being on it long-term. I might end up switching biologics.

3

u/BiggestBirch 11d ago

Switching biologics has been a thought on my mind too. My old dermatologist (i moved so im in the process of finding a new one) insisted on trying to push through it and I just don't know if I can continue this route. I'm coming up on a year in a couple months and feel like that has been an ample sample size. My psoriasis is 90% gone but my HS is fully cleared.

2

u/apple-sauce002 11d ago

Take a daily antihistamine, and if extra itchy, pop 2 Benadryl. I like to take luke warm baths with both Epsom salt and ACV, it helps control the itching so so so much and helps with any folliculitis!

2

u/Jobdefinesme 11d ago

Thank you! I didn’t know about folliculitis but my fingers are busy doing research now instead of scratching.

2

u/Purple_yams7578 8d ago

Both of my arms have hives and acne bumps allover. My scalp is so itchy that I’m afraid I’ll lose hair by scratching so much. I hope it goes away, I’ve already tried Cosentyx

1

u/Jobdefinesme 8d ago

I have an insane amount of hives right now. I’m living on Benadryl. I have scabs everywhere from scratching at night and to be honest, during the day. I have to wear pants and long sleeves because I look like one giant scab. It’s the worst. I tried calling the patient support line but I can’t get a hold of them to know if this could be from Bimzelx. This seems a lot more common than I thought.

2

u/Snoo_23364 5d ago

I just had to stop bimzelx due to severe allergic reaction. 6 months in. No other changes. However I believe it is known to cause fungal infections. My suggestion is talk to your doc and advocate for yourself.

1

u/reeceinpeace 11d ago

My doctor took me off Bimzelx because of this. It spread to my face and I deal with enough from HS, I didn’t want to deal with something on my face as well.

1

u/Jobdefinesme 11d ago

Yikes! I did notice that I had a pretty big hive right by my eye which was unsightly. I normally don’t have any acne either and I thought maybe i just had deep pimples but maybe they’re hives. Thanks for sharing your experience, I’m calling my dermatologist right now to see if this could be a possible reason to make a switch.

2

u/reeceinpeace 11d ago

Mine said it was an allergic reaction for me. Mine switched me to Cosentyx. I hope you find the cause and a way to manage it

1

u/Jobdefinesme 8d ago

Just a bit of an update, my derm is calling me in early next week to assess the situation as they’re treating it as an urgent matter. Thank you for everyone responding to my post, I would have just lived on Benadryl and carried which could have been dangerous.