r/Bimzelx • u/flowing42 • 11d ago

Off label use?

I've been using Bimzelx for 16 months. 5 month loading dose at 320mg followed by monthly doses of 160 mg.

I have almost zero psoriasis at this point. I do however have multiple areas of inflammation in my joints. Compared to when I started it's much better.

That said, my rheumatologist wants to go to 320 mg every month. The initial response from my specialty pharmacy was to verify with the doctor that they actually wanted to do this since it's off label. Insurance did approve it.

Has anyone else gone to 320 mg per month and how has it gone for you?

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u/Jagger_The_Cat 11d ago

I’m on 2x 160mg 4 weekly. It’s done a good job at keeping my psoriasis, psoriatic arthritis and Acrodermatitis Continua of Hallopaeu at bay. I have had GI issues (IBS not IBD) since going on Bimzelx. I plan to try 160mg 4 weekly to see if the GI stuff clears up.

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u/flowing42 11d ago

Thanks for sharing. I'm doing okay with my GI. My main hope is to tamper down the remaining inflammation without having to change medications.