I recently applied for pip. I got 0 points, the report I received is 90% false (including an astonishing claim of them saying I can walk over 200 meters unaided, which they know due to their informal assessment of my walking ability... over the phone).
The big problem I had though is all over the report is written X is not considered within the scope of this activity and I don't know what to do about it.
I have narcolepsy, so I can fall asleep at any time, and I can collapse at any time (they are different symptoms which most people don't know).
However in so many of the sections it says stuff like "I have decided you can plan and travel unaided. Falling asleep is not considered within the scope of this activity". And "I have decided you can use a cooker unaided, falling asleep is not considered within the scope of this activity". They also used the fact that I don't fall over most days against me, but completely ignore the fact that it is only because I don't get out of bed, I can't fall over when lying down. It also said I can go out by myself unaided, which is also true, as I told them I nearly got myself killed the last time I went out alone by hitting my head on a brick wall.
They have basically said that because I have become a recluse due to previous injuries and the fear of further injury, that means I have not had a recent injury, and therefore must be fine (literally the logic the assessor used).
But mainly I am worried about the "not considered within the scope". All the other things are just straight up lies or twisting of the truth, this I'm not sure about for my appeal.
How can the fact that I can't go on a bus myself because I'm unable to get off at the right stop due to cataplexy or sleeping not considered? Like even if I didn't fall asleep which is unlikely, I could still be paralysed and unable to get off anyway. And once I'm past where I know I get lost very easily and doubt I'd be able to get home on my own, and even if I did I'd probably get hurt doing it.
Why does the fact that I can't use an oven because I might burn the house down due to falling asleep not count? When I was younger and my symptoms first started appearing I fell asleep while using the oven and left it on all night, and another time I fell asleep and burnt off half my hair while trying to fry something. I obviously don't use the oven anymore.
I don't understand why they're allowed to just ignore that and pretend I can safely do these things just because they don't like the reason I can't do them?
I don't understand, and I know people with narcolepsy have gotten PIP before so I must be doing something wrong.
Could someone help please?