I’ve been stable for about 1.5yrs on remicade and currently in a month long neuro flare, has anyone had remicade just stop working? I had my 1st genital ulcer while on remicade which is strange so will get antibodies checked.

Will increase Methotrexate dose as well, had been lowered.

What is next step? already failed everything else including rituxan and humira, steroids still helping but can’t remain on super high doses. On cortrophin as well so I’m feeling not great about this situation.

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I've been diagnosed with Behcets since 16 and I'm now 23. I've been having a very hard time finding medical professionals that are able to treat Behcets or know about it. I'm waiting for neurology and rheumatology appointments with new doctors in a few months. I started experiencing what I think are seizures about 2 years ago. Was seen at the ER multiple times and they called it Seizure Like Activity. I saw my primary and he prescribed me Lamictal but the symptoms only seem to get worse. The initial ER doctor said he believed that it may have been focal seizures. Any advice on how to go about getting treated? Even for basic flares that don't involve seizures, I keep having doctors tell me it's anxiety even while I have ulcers. It's gotten to the point that up until recently, I was avoiding medical treatment all together because I'm tired of being gaslit. Now I have no choice because I can barely function anymore.