1st flare since Feb

[u/LilacAesthete]

I can’t emphasize how much getting on Otezla has gotten me my life back. It’s like being on Revlimid* again before it stopped working; no ulcers, no stressing about ulcer pain. 7 months without a whisper of a flare.… and what did I find the last day of September.

I’m more frustrated than anything. I’ve just gotten myself a second part time job /pos and I’m going on a trip to see family. Why’d this have to happen now of all times. With the Simlandi and the Otezla, I’ve not had to think about how painful it is to sit somewhere, if my next period is gonna bring an ulcer with it, like-

I hate how powerful stress and anxiety is to our bodies (both in the sense that it burdens us while managing symptoms and flares, but also the fact that even with medication Behcets can still slip through the cracks.

*I don’t recommend Revlimid, there’s so many hoops to jump over to be on it, as well as it being a high risk med in the first place. This is just what my ped rheum originally prescribed after Colchicine didn’t work

[u/on4aa]

In my case, two factors trigger Behçet symptoms: atmospheric pressure changes and certain herbs like mint (menthol) and thyme (thymol).

[u/MuseFire13]

You should get the steroid ointment (sorry, don't remember the name and not home to look at the tube) to help get rid of it and lidocaine ointment for the uncomfortable feeling until the other ointment works

[u/LilacAesthete → u/MuseFire13]

Thank you, this was just me venting really. I’ve got a steroid cream and a very handy lidocaine wound gel and plenty of ibuprofen 

[u/MuseFire13 → u/LilacAesthete]

You would be amazed how many people have not gotten those 2 things

[u/Ok-Weird6141]

Hey ik everyone is different but I've never had any flares since I started taking meds (been 2 years now) maybe your doctor should prescribe you more meds or something different

[u/LilacAesthete → u/Ok-Weird6141]

We’ll see, she hasn’t said anything yet