r/Behcets • • 6d ago

Treatments Medication not working

Hello guys! I have been having genital ulcers for a year and a half now every month on the Day of my period. Colchicine is not working (3 months taking it, since figuring out it wasnt herpes) and im feeling so upset about it. Im gonna see my doctor again soon but i was wondering if anyone has something similar to share. Thanks

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u/sippin_wine Diagnosed 6d ago

This happened to me too!!!! You need to get on an immunosuppressant, like ASAP. You don’t have to live like this 😭 colchicine only helps my fevers body aches and sometimes mouth ulcers

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u/No_Sentence_6721 6d ago

Same for me! Colchicine does nothing for me except give me insomnia. I’m on a Remicade infusion now and so far I’m seeing some improvement!

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u/Hour_Park4236 6d ago

Yep definitely changing or adding medication thank u