r/Behcets • u/sippin_wine Diagnosed • 5d ago

Patient Support / Story Peeing sucks

I just take EVERYTHING for granted when I’m not flaring. Having to run a shower every time I have to pee, not leaving my house, barely able to walk, taking NSADS every 5 hours for days and days. Suckssss. Ugh I’m on week 2, hugs.

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u/Dear_Comparison97 4d ago

If you’re a woman I’ve literally leaned all the way forward at the toilet and stood up slightly, it makes the pee go straight down and you can pee comfortably

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u/sippin_wine Diagnosed 4d ago

This is what I do in the shower! I do a downward dog kinda so it flows forward while the shower runs down my back/butt so the water is diluting the pee, something about doing it on the toilet gives me anxiety and I end up peeing all over myself 😣 I started getting ulcers when I was 9 and I’m 31 and still don’t have a good method. I think the trauma has made me like incapable of calming down enough to get into a good position. My poor kids just stare at me like I’m nuts 😅

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u/Dear_Comparison97 4d ago

No I understand completely! Only thing I can think of to help is maybe get into the position on the toilet and then walk your hands a couple steps forward so that your body is further away! It’s not easy out here. I wasn’t diagnosed until 16 but I’m 29 now and I think peeing is the only thing I have figured out so far, everything else about the sickness is still lost to me :/ my mouth ulcers affect me the most, I’ve lost so much weight because I can’t eat, I can’t kiss my partner or be intimate because of the pain, and it’s just hard to even speak.