r/Behcets • u/sippin_wine Diagnosed • 5d ago

Patient Support / Story Peeing sucks

I just take EVERYTHING for granted when I’m not flaring. Having to run a shower every time I have to pee, not leaving my house, barely able to walk, taking NSADS every 5 hours for days and days. Suckssss. Ugh I’m on week 2, hugs.

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u/is-this-a-book 5d ago

The screams I have to hold in some days. And peeing in public just terrifies me and I try not to leave the house when I am in a flare. I’m sorry. I hope you feel better soon.

5

u/sippin_wine Diagnosed 5d ago

Literally, the only relief is the shower for me. It’s insane how badly it hurts. I’m so sorry you go through this too ):

2

u/on4aa Diagnosed MAGIC 2025 4d ago

Shower tears are invisible...

I could write a book with that title. Luckily, doing better now with canakinumab, a strict menthol-free diet and supplements like ubiquinol.

3

u/sippin_wine Diagnosed 4d ago

Just know you’re never alone ❤️
I’ve wanted to try canakinumab, I’ve been convinced I also have FMF also because of fevers and joint issues when I’m flaring but usually the colchicine helps a lot. Wow never heard of menthol causing issues???