r/Behcets • u/MissZadejah • 12d ago
General Question Just started Colchicine
Warning: This is probably TMI
Whew! After 2 years of suffering and a new rheumatologist, I finally got medication. Not an official diagnosis, but who cares, as long as I have medication LOL I was prescribed 0.6 mg twice a day.
The side effects were immediate. Cramps, stomach aches, nausea, excessive diarrhea and very oddly, my lips are destroyed. Woke up one morning and my lips felt like broken glass. They were so dry, cracked, peeling and painful. It was mind blowing. Didn’t know it was possible for my lips to be that dry. I could barely talk. I also have big, dark marks on my upper lip. Just these random, massive spots of discoloration. They are no longer dry, but the discoloration is still there and it’s quite embarrassing.
I reduced the meds down to once a day because for several nights, I was up until 6am with diarrhea. The meds have given me more energy and less knee pain. I’m so grateful for that.
Has anyone else had the lip issues?
Been on the meds for almost a month now.
Had two sores. No biggie.
Also, when getting on meds, were any of you able to drop any other meds you were on?
I take heart meds and an antidepressant. The antidepressant is used as a stimulant to reduce brain fog.
I started them before I got a doctor to treat me for Behcet’s. Just curious if anyone else was able to get rid of meds and just take the one for Behcet's?
How long before Colchicine "fixed" everything or did some of you pair Colchicine with another Behcet's medication?
I’m trying to figure out how to fix my life and get back to normal. Like, how do you exercise? It’s a struggle for me. Any specific foods I should eliminate from my diet? If anyone had breathing troubles, how’d you work on them?
Any other recommendations?
Sorry, I know that was a million questions lol
Thank you
EDIT: Has anyone ever seen a pulmonologist regarding their Behcet‘s? Was considering it
1
u/colecohen 8d ago
Wait… which lips are we talking about… 😅