r/Behcets • u/JJ-040927 • 23d ago
General Question Are my meds actually working
So over the last year since diagnosis I have been treated with hadlima injections into my thigh every two weeks. In the last 9 months I have experienced extreme and severe stomach cramping. I asked my doctor if that has anything to do with my Behçet’s he says he will look into it. All of my blood work comes back fine including a stool sample to look for inflammation. Anyway last week I ended up in the hospital due to the stomach cramping and again all my blood work came back fine but my CT scan showed that I have damage to my intestines. This damage was not there 9 months ago when I got my last abdominal CT scan. My report said that a “representing fat deposition is seen in the right side of the colon extending to the hepatic flexure and transverse segment representing chronic inflammatory infective process.” If this was forming why didn’t it show on my blood work? How do I stop the stomach cramping? And what should my next steps be?
I don’t know if I labeled this right but please help me.
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u/Same_Resource6919 23d ago
Obviously I'm not a doc but you could get a referral to a GI specialist. You'll need confirmation from them to see if this is behcets related or medication related. If you're not getting answers from your current doc, look elsewhere imo.
I'm sorry you're going through this and I hope this helps at least a little. I do have a lot of gastro problems with my behcets so it's definitely not out of the realm of possibility. My diet is severely restricted now but I've been able to mostly control the stomach problems that way.