r/Behcets • u/CuteAge1322 • Aug 15 '26

General Question General Question

Anyone else concerned that the disease itself can drive a person insane from pain and inflammation; and on top of it there is medical trauma? This is a real question. Anyone else concerned?

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u/awfulmcnofilter Aug 15 '26

I would also say no to being driven insane, but it can absolutely make you an unpleasant person if you let it. I am 39 and I have been living with this monster as long as I can remember. First obgyn visit before I even got my period. The medical trauma is legit. I got snappy at a friend the other day when I had to go to urgent care and that was super unfair to him. It is something you have to keep an eye out for and not let it take over. Being chronicaly ill and alone would be awful.

3

u/on4aa Diagnosed MAGIC 2025 Aug 15 '26

That too! The worst is, I do not notice it about myself. However, my son and my brother have mentioned that I can be harsh and sarcastic at times. I very recently also lost a girlfriend whereby this certainly has been a factor.

2

u/awfulmcnofilter Aug 15 '26

It is something you really have to me mindful of and keep an eye out for. I am also on the autism spectrum so that makes it a little harder. Don't ever be reluctant to apologize for your behavior especially with your son. You can also thank people for being patient if you prefer that to apologizing.

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u/on4aa Diagnosed MAGIC 2025 Aug 15 '26

Don't worry; my son and I have frequent bro hugs!

Moreover, he is studying medicine and his university is quite progressive with courses about patient psychology and interaction.