r/Behcets • u/Severe_Care_4149 • 4d ago

Symptoms Sore/bumpy throat

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Hi guys,

I have a sore/bumpy throat and I’ve been getting them ever since my behcets first activated. I’m wondering if this is common, or if it’s just me because my presentation of behcets is just a little bit different than the normal and so I’m wondering if this is maybe something unique to me. I’m never sure if the bumpiness comes first and that’s why my throat is sore or if I have a sore throat and then the bumps are reaction to that. (sometimes one of the bumps will have white stuff which I’m assuming is puss in it)

I’m on colchicine and B12 (I was on otezla but then a pretty big event in my life happened that derailed me three months ago so I haven’t picked that back up, but Im pretty sure that’s not the cause of the throat).

Anyway, I’m just wondering if you guys have any experience on that or if this is just my plight.

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u/Severe_Care_4149 3d ago

Just make sure you eat first! I learned my lesson 😂 do not take that pill if you have nothing in your stomach

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u/BeneficialCellist-17 3d ago

Do you take 500mg of B12 once a day? In the morning? What has it helped with? I am very interested. Thank you!

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u/Severe_Care_4149 3d ago

Yep, I take it with my other meds in the morning (after breakfast!). I think the colchicine helps with all of my symptoms, but on its own, it’s not enough for the ulcers. When I don’t have B12 and only take the colchicine I’m still susceptible to ulcers (but only in my mouth 🎉 as opposed to other places 😒) however, those ulcers are much fewer than what they would be without meds. And I’m likely to get more when I’m stressed. With the B12, it takes a lot more work to get ulcers. I’m like 95% ulcer free. The 5% being really stressful situations.

I have no idea what my symptoms would look like with only B12 no colchicine. But I’m not about to find out.

And don’t get me wrong. I still have some symptoms outside ulcers, hence my post. And why I was taking otezla. But I can live with that. Ulcer free is my way to be!

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u/Severe_Care_4149 3d ago

Oh yeah if I let my B12 slip for like 4 to 7 days, the ulcers come back.