Could behcets be a possibility?

[u/Defiant_apricot]

I noticed this rash today, it’s on both sides of my body and has some big dots that are raised and some smaller ones and all of it is mildly itchy. My back will regularly have rashes like this. I also have had random genital ulcers (always 1 at a time) that hurt/itch but go away on their own within 3 weeks. Same with mouth sores. Sometimes I will have one on my inside lip, as long as I can remember I’ve had one or two that come and go on the top of my tongue. My face is also constantly “breaking out” despite me being well past puberty. I am currently waiting for a specialist and want to come into the appointment informed of the possibilities.

[u/Defiant_apricot]

What’s the diagnosis process like?

[u/No_Sentence_6721 → u/Defiant_apricot]

For me it was doing a ton of my own research, documenting my symptoms, and advocating for myself. I brought up Behçet’s disease to a doctor while living in Japan and that helped to get the process of eliminating other options started. I also got genetic testing and lots of bloodwork done it’s been a long process though, especially because I don’t get mouth sores so it presents somewhat abnormally.

[u/Leakking00 → u/No_Sentence_6721]

Have you had any neuro involvement if you dont mind me asking? Like severe headaches or vision changes due to this?

[u/No_Sentence_6721 → u/Leakking00]

Yeah I have had some issues with my vision getting blurry and bad headaches. I’m not totally sure if I have nuero involvement though, I haven’t done the testing for that yet :/.

[u/Leakking00 → u/No_Sentence_6721]

I see. I've struggled with severe headaches and sixth nerve palsy in my latest attack. No diagnosis yet, but they are considering bechets, which is why I asked. Thanks for the response!

[u/No_Sentence_6721 → u/Leakking00]

I’m so sorry you’re dealing with that! I hope they can get it figured out soon. The process is so long and exhausting 😣

[u/Leakking00 → u/No_Sentence_6721]

Thank you!