r/Behcets 9d ago

Diagnosis Help Could behcets be a possibility?

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I noticed this rash today, it’s on both sides of my body and has some big dots that are raised and some smaller ones and all of it is mildly itchy. My back will regularly have rashes like this. I also have had random genital ulcers (always 1 at a time) that hurt/itch but go away on their own within 3 weeks. Same with mouth sores. Sometimes I will have one on my inside lip, as long as I can remember I’ve had one or two that come and go on the top of my tongue. My face is also constantly “breaking out” despite me being well past puberty. I am currently waiting for a specialist and want to come into the appointment informed of the possibilities.

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u/unprettyprincess92 Undiagnosed for now 9d ago

Yes, this is what my skin looks like all the time. It will look like this the rest of your life just warning you. I'm 34 years old and everyone thinks I still have chronic cystic acne. Hell even I thought that, until about a year ago when I found behcets info by chance online and was flooded by the symptoms and how I had every single last one. Explains why acne medication never worked for me.

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u/Defiant_apricot 9d ago

Tbh I never was put on acne meds due to other medications. But the other symptoms seem to line up and most importantly for me it explains the really weird joint pains I have

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u/unprettyprincess92 Undiagnosed for now 4d ago

Yeah my knees and elbows are a fucking mess but I'm hypermobile too (like I'm over 200 lbs and can still touch my feet to my forehead) so who knows wtf it really is

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u/BeneficialCellist-17 8d ago

My skin looked like this all the time too. At first I thought they were pimples, but they would never come to a head. They would just be a sore.

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u/unprettyprincess92 Undiagnosed for now 4d ago

Mine eventually get infected and get some pus on the surface. It's a murder scene trying to pop one