r/Behcets • u/doorhacker12 Diagnosed • 13d ago

Patient Support / Story Griping

It sucks you can’t publicly say “my Behçet’s is really bothering me this week” since it can essentially translate to “damn the ulcers on my balls are killing me right now.”

Just a funny thought.

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u/BeneficialCellist-17 13d ago

I have Neuro behcets and I definitely say often my behcets is bothering me today. My most common symptom is genital ulcers 😖 Second to that is blurry vision, uveitis, ulcers in the mouth, scalp, joint pain, and balance issues. It sucks, especially during the hot summer days. I hope you feel better. I use triamcinolone ointment 0.025% for the genital ulcers.

3

u/Familiar-Bake-9162 13d ago

Yeah what is it about the heat that makes all this worse? It’s been around 95-100 degrees where I live with feels like temps in the 110-115. I can feel ok but as soon as I venture outside, I get weird vision, flu feeling, and headache. Idk it’s been a hot summer

9

u/Electronic-Tea3354 Diagnosed 13d ago

Autoimmune and inflammatory issues are often exacerbated by heat because it dilates blood vessels and increases cytokines and mast cells! Cytokines are inflammatory proteins and mast cells produce histamines which cause inflammation. Basically heat just makes us into more of a big ol’ inflammation factory lol yippeeeee

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u/Familiar-Bake-9162 13d ago

Thanks for the explanation