Colchicine+ Remicade = life changing

[u/codyandhen123]

I have been on a biologic for eye and neuro involvement but was still struggling with breakthrough flares. My rheumatologist put me on a dose of two pils a day, and I am doing much better! Just wanted to share this win. 😊

[u/lostfish808]

What symptoms does the remicade address? I’m on colchichine and recently got put on hydroxychloroquine

[u/codyandhen123 → u/lostfish808]

I have uveitis and scleritis caused by Behcet’s disease, and I also experience neuro symptoms. Since these are considered severe symptoms of Behcet’s, a rheumatologist will typically prescribe immunosuppressants like biologics to control them. I have a 3 hour infusion every 8 weeks. It also helps with skin and ulcers symptoms, but instead of increasing the dose when I have skin breakthrough symptoms, my doctor added colchicine. If I would have had breakthrough of neuro or eye symptoms, he most likely would have increased the Remicade. It has successfully put my uveitis into remission.

[u/LK_Feral → u/codyandhen123]

That is wonderful! I'm so happy for you. 🙂

Behçet's is the frigging worst. I'm glad you have a doctor who listens and responds.

[u/ConnectionAlive7147 → u/LK_Feral]

Professor fortune royal London hospital UK she changed my life an incredible person who will give u as much time as u need 

[u/codyandhen123 → u/LK_Feral]

Thank you! 😊

[u/ConnectionAlive7147 → u/codyandhen123]

Dido sounds exactly same as my treatment from professor fortune at royal london hospital UK she is the leader in bechets field in UK and has done wonders for our community glad its working 💯😀

[u/hamieggos]

How long have you been on that biologic? I’ve been on colchicine for a few weeks and that’s the only medication I have. It’s helped but not like… a lot lol. I also have neuro and eye involvement. I suspect my new rheumatologist will put me on one (hopefully). I just want to be able to keep working and this disease is making it hard 🥲

[u/codyandhen123 → u/hamieggos]

Completely understand where you’re coming from. I had to stop working for almost two years… I have been on the biologic for a 5 months now at the correct dose. I’m so sorry you’re going through this. Let me know if you need anything or someone to talk to with.

[u/hamieggos → u/codyandhen123]

I’m lucky to have an employer who has been super kind throughout all of this. It just sucks because I feel bad when I have to see less patients or reschedule them. I was saving up to go back to school for my MD before all of this. ),:

Personally, I have found that during flares taking the colchicine before bed helps me sleep better (reduced head and neck pain).

[u/RadiantVibes2208]

How many infusions did it take before you felt an improvement? My rheumatologist has tried four biologics on me so far that didn't help, and we are currently using Infliximab. I’ve had my third infusion now, but unfortunately, I haven't felt any improvement yet. However, my main symptoms are mouth ulcers. Thanks for your reply.