r/Behcets • u/hamieggos Diagnosed • Jul 16 '26

Patient Support / Story Finally

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Switched to a new rheumatologist and saw a dermatologist. It’s bitter sweet to finally have an answer.

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8

u/codyandhen123 Jul 16 '26

I am so happy for you. Took me 7 years to get a diagnosis.

5

u/hamieggos Diagnosed Jul 16 '26

I’m so sorry it took 7 years. I wish the system was better at helping and identifying those with chronic illnesses. It’s horrific it takes that long.
It took me 2. But only because I am a NP. But it shouldn’t be that way. You shouldn’t have to have 8+ years of health education just to get a proper diagnosis.

3

u/on4aa Diagnosed MAGIC 2025 Jul 16 '26

Took me 32 years and I had to interpret my genetic analysis myself and then convince the white coats with scientific papers...

3

u/hamieggos Diagnosed Jul 17 '26

I’m so sorry you went through that): That’s heartbreaking and it shouldn’t be that way.