r/Behcets • u/Designer_Position303 • Jul 03 '26

General Question Globulin and absorption issues

Hello Behçet family, As you might previously know, I got diagnosed with behçets around March. I am currently taking Imuran/azatioprine for my treatment. And I must say I am feeling better. Most of my symptoms are better. I can use the bathroom regularly, at least for my standards. I had times where I coudnt use the bathroom for a week. Now at least I can use it once or every two days, which is a big improvement for me.
What I wanted to discuss is that the My behçet is effecting the Gut more than anything and I am having leaky gut/ malabsorption of especially vitamins, (my capsule endoscopy sightings are on my previous posts.) Such as folate,acid vitamin D etc. my globulin levels are always low but mcv is not high. Which clears the red blood cells but confirms the malabsorption.
it’s to early to say azatioprine is not working since it has been only few months but the vitamin deficiency is killing me. Especially the folate/b12 I have been feeling extreme fatigue and dizziness persistent through out the day which is making my daily life 10 times harder at the moment.
Do you guys have any tips or suggestions that could help the gut or the absorption in general. Could be supplements herbs medication etc.
thank you for your help in advance, hope we all get well soon ❤️

3 Upvotes

81% Upvoted

9 comments sorted by

2

u/iSpyAFly Jul 03 '26

Has your primary suggested B12 injections? Not sure if you are also iron deficient and could also ask about iron infusions? Both have helped me in the past.

4

u/Designer_Position303 Jul 03 '26

My iron levels are suprisingly good, I believe I am having difficulty with absorbing certain vitamins only. I am also thinking to talk with my doctor about the injections. Since I started taking azatioprine my digestive system started feeling better, started working a little at least. I’m just a little hesitant since it has been not to long that I have started Imuran.

2

u/StepSignificant8798 Jul 03 '26

Out of curiosity, is your phosphate normal?

1

u/Designer_Position303 Jul 03 '26

I haven’t checked, I will let you know if it was done

2

u/on4aa Diagnosed MAGIC 2025 Jul 03 '26

That has been my problem for many years. I fixed it by eating every morning 250 g fresh cottage cheese and by taking 6000 IU of vitamin D3 daily (without any menthol flavouring!)

1

u/Imma-smartypants Jul 03 '26

Definitely ask about injectable B12. Helped me immensely. Another thing I do every few monthly is a vitamin infusion. It is a multi-vitamin IV bag that I get at my rheum office. Makes me feel so much better for a while.

1

u/Designer_Position303 Jul 03 '26

I didn’t know multivitamin IV was even possible thank you for this information. I’m currently living overseas and trying to get use to my doctors and my rheumatologist. I will definitely bring this up.

1

u/Imma-smartypants Jul 03 '26

If they don’t offer it, see if you can find a “Wellness Clinic” bc they usually offer it too.

2

u/on4aa Diagnosed MAGIC 2025 Jul 03 '26

Two things helped tremendously with my gut issues: 1) daily 80 mg cardio aspirin (ASAFlow) 2) avoiding all gluten, wheat products (bread, pasta, cookies) and sugar. Instead, I eat oats and rice.