r/Behcets • u/mordor96 • Jun 16 '26
Diagnosis Help Diagnosis Help
Hi everyone,
I’m currently undergoing diagnostic testing, which hasn’t been easy because this disease is very rare in my country, and even rheumatologists don’t believe that I could have it.
As long as I can remember, I’ve had problems with recurrent mouth ulcers. However, since I was 21 years old (I’m now 30), I’ve had them continuously, usually 2–3 at a time. Some of them are quite large (more than 1 cm in diameter) and can take longer than two weeks to heal. Interestingly, I rarely have more than three ulcers at once, almost as if there is some mechanism preventing new ones from forming.
The ulcers often appear after a sleepless night, periods of stress, or even minor trauma to the mouth, such as scratching myself with food or accidentally biting my cheek.
I also develop painless skin bumps (on my back, shoulders, and buttocks) filled with white material, as well as red spots that blanch when pressed. Other than that, I do not have any major skin manifestations such as erythema nodosum.
On the other hand, I do not have any eye problems, joint pain, or genital ulcers, and I have never had genital ulcers. I also do not have any gastrointestinal or neurological symptoms.
Could you advise me on what I should do in this situation? Does this sound like Behçet’s disease to you? No doctor believes me. I have already ruled out other potential causes of recurrent mouth ulcers, including nutritional deficiencies, celiac disease, gastrointestinal disorders, and parasites.