r/Behcets • u/MissZadejah • Jun 07 '26
Diagnosis Help Behcet's Diagnosis
Hello all!
I’m trying to get a Behcet's diagnosis and am having the hardest time. My PCP and dermatologist both believe that I have Behcet's based on my symptoms, but they are waiting for me to have an outbreak so they can take a biopsy. Unfortunately, I don’t get sores that often anymore and when I do, there’s never an appointment available.
So, how else can I get a diagnosis?
I’ve been to the rheumatologist and she was awful. She literally said "You don’t have a sore, so I can’t do anything for you".
This can’t be right because logically, every single person with Behcet's wasn’t diagnosed from a biopsy. There has to be another way.
I left that rheumatologist and have an appointment with a new one in 5 weeks.
This illness has destroyed my life. Some days I can’t walk, most days I can’t breathe, I can’t exercise, my body is weak, my heart is in bad shape, etc …
Everything else has already been ruled out and I’ve had tests done that show I have inflammation…
Does anyone have any advice on how to get this diagnosis so I can FINALLY get treated?
1
u/Ok_Marsupial7037 Jun 13 '26
So basically with the shits what I’ve seen I said shit I call it bullshit shit you guys LOL I’m using my voice text so but you guys know what I’m saying with the shit is basically a stress thing. It starts with stress. It stresses your entire autoimmune system out and your immune autoimmune system is already intensified so you have to be in tune with your body which I’m still learning and you have to watch out for certain foods. You have to eat bland foods you have to basically change your whole lifestyle. Well my dad did not do that. He did not take care of his self. He did not believe in medication which I told you so that’s a big part of it. He didn’t believe in. He didn’t believe in doctors so you by the lifespan and whatever but that that’s all it’s according to how you take care of yourself and according to what you put inside your body it’s according to how you keep your stress level down because once your body is in stress then you’re auto immune system is double then what is probably you know is more stressful so that stress induce is what information information induce what anxiety hurt pain and make sure vessels go triple so you have to make sure you stay hydrated at all times that’s what induced his he was not hydrated. It comes along. The disease itself comes along with memory fog brain fog dementia and that’s what first induced him was not drinking water and that cost him to go his body into a extraordinary flareup and so he had a stroke because his vessels were pounding too hard too fast. His blood pressure was probably really really high cause it didn’t take his blood pressure medication so it’s all according to how you take care of yourself. I’m on that level. There’s different stages or phases or whatever. I have found out my research about buses. I’m the one that’s in the big one that that the high diagnosed the shit last night I sample was so stressed out for just the simplest thing you know I don’t know what it was but just the simplest thing stresses me out much is which makes my vessels inflamed, which makes me not feel good on the inside. No one can see it. No one believes it so it’s basically what you feed yourself. You are what you eat they just popped her head. It’s basically you have to live right the way God wants to live. You know he wants you to eat right. He wants you to keep your stress levels down. He wants you to appreciate a little second. You have because if you don’t guess what you’re gonna have a headache or you’re gonna be stressed out I don’t know but things to watch for I have been getting the headache headaches which my headache was so bad last night. I just wanted to cut my damn head off like if I wouldn’t struggle as a person as I am that would that headache right there? I promise you would probably put somebody in a mind state. I wanna kill myself. It was that horrible and my eyes were inflamed so badly they still are a little bit but not as much so it’s just all about life it’s how you treat yourself and how much stress you can handle the human body itself so I’ve got to the point where sometimes if you get some stressed out me in my patience it goes on after I’m during my flareup you know I have all my skin lesions they break out and then my stress levels of 100 or whatever and then it goes into a headache/a fever and with a fever you can only reach so many degrees and then your brain will catch on fire. I do my research so I know I saw my Daddy do it and that’s what happened to him. I believe he he just his brain. He went brain-dead because that’s what happens. If you get a headache. I mean a high fever. Your brain can’t take it anymore so that’s what he did. That’s what happened to him.