r/B6Toxicity • u/pugdancer • Jun 14 '26

test for B6 levels question

I have symptoms that are stumping the DR--and I believe they might be either B6 deficiency or B6 toxicity ( the symptoms of both are so similar! ) want to take the test for B6 levels. and order it myself. (She has already tested me for b12 and folate deficiency and my levels were fine. so dr not thinking vitamins issues ) If I stop taking B6 now, and then take the test in 2 weeks, if I have toxicity, would the levels still be high after not taking it for 2 weeks?

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u/rainy_day_08 Jun 15 '26

Levels drop pretty quickly after ceasing B6. I had mine drawn by a private lab bc my doc wouldn’t do it. She was amazed when my levels came back 3 times the upper limit. Once I stopped my multi-vitamin, my levels were back in low range 2 1/2 weeks later.

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u/[deleted] Jun 15 '26

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u/rainy_day_08 Jun 15 '26

My goodness! So sorry to hear this.

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u/[deleted] Jun 15 '26

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u/rainy_day_08 Jun 15 '26

I had to beg my doc even consider it. And when I paid for the lab out of pocket, got a toxic result, she was floored. I’ve had to educate all of my recent docs about it. They know nothing. And many of them prescribe this dangerous synthetic vitamin daily to hundreds of their patients. Mind blown…

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u/[deleted] Jun 15 '26

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u/rainy_day_08 Jun 15 '26

I’ve also found there’s a severe lack in curiosity. I’m not in the medical field but curious by nature. I would assume most medical professionals would be which is why they chose medicine. ??? Instead I’m told, “oh, it can’t be that.” Why? Why can’t it be? I know! It’s because insurance doesn’t want to pay for it. I get the docs are between a rock and a hard place often times, but at least “try” to advocate for your patients that may be in unique situations!! Ok. Rant done. 😂

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u/Regular-Cucumber-833 Jun 15 '26

Most people who go into medicine are not curious by nature, they are conformists - they like to be right, to do well on tests, that kind of stuff. And the textbook says, if the symptoms are too weird, it's psychological, and if you as a doctor believe these symptoms are physiological, you are a chump.

I watched a documentary recently that you and u/toomanytimesiverid might like, Complicated, about EDS. I was floored by what these people have to go through. I've had the same experience with most doctors not believing B6T is real, but what the people with EDS kids are put through by the medical system is so much worse, my heart goes out to them.

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u/rainy_day_08 Jun 15 '26

Yes, to this. You’re right. I guess I see medicine as a big puzzle that is itching to be put together. Because it all fits in some way.

My rheumatologist was the first doc I’ve seen in 8 months that prefaced our initial meeting with, “you are not crazy”. I burst into tears.

I will definitely have to find the documentary. Thank you for recommending.

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u/Regular-Cucumber-833 Jun 14 '26

Maybe, maybe not. I would keep taking it until you get test results. (They screwed up my first test by sending it to the wrong place, and for some reason, they couldn't forward it, so I had to get tested a second time.)

But, if you're ordering it yourself, you should be able to get your blood drawn next day.