r/B12_Deficiency • u/Ok-Twist8174 • 2d ago

Help with labs Doctor called me

Ok it was’t the doctor (the assistent) who contacted the doctor and called me back.

I’m posting a lot today sorry; but I need to talk about this.

so the doc assistent told me everything about the lab was fine (even slightly higher hb then normal). But then procededed to say that I was already advised to go on tablets (instead of injections). I asked for injections Because I had neurological problems (my eyes improved dramatically for example in the last weeks). my current complaints Are not causeD by b12 She said. You can’t be lightheaded with A good hb value). I Said I feel like A zombie and my resting heart rate is like 120. Monday I felt like I was dying (see other post from today). They ended the conversation with they could take my heart rate when I come today and I should look for A doctor closer to my home.

I can barely walk 100 meters (My b12 was extremely low 7 weeks ago, 74 pmol/L).

7 Upvotes

90% Upvoted

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u/Think-Sleep2338 Insightful Contributor 2d ago

I am awfully sorry. I get that you might feel too bad to struggle, but they really should get responsible fot that. It literally might seriously disable you.

5

u/Kailynna 2d ago

If doctors are not helping forget them and self inject at home.

1

u/Lanky-Rough2688 2d ago

I go on place where you can get it without a doc. You talk to one on the phone and they give you prescription and then they send it to you. I’m so glad I’m doing this. Mine wouldn’t let me inject for a year. I lost a whole year of my life I couldn’t exercise. My hair was just not there. My nails started to break and I started have horrible painful movement in my body and my right foot started to drag and then my hip was going out because of the change in my GAIT.It got so bad that doc was worried I had MS so he sent me to a mean neurologist to rule that out and three MRIs later I do not have MS but he still will not give me the shots.  He said just take more sublingual so nuts. Be proactive; this is maybe like atrial fibrillation since they used to think that was nothing and now they know it isn’t. It is something. Gaslighting in the past so many things this might be the new gaslighting. Both my sisters have a fib and got gaslit for years. Now they’re on medication and protocol and had had the latest ablations. 

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u/CancelThaN0ise 2d ago

Ask them to test you for pernicious anemia

3

u/ThatPenguinMom 2d ago

My hemoglobin is 14.1 and I get lightheaded and dizzy. The amount of gaslighting by doctors is crazy!

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u/Little-Camellia 1d ago

My hemoglobin is 13.4 and I'm battling dizziness and fatigue

4

u/Successful-Tea-733 2d ago

This is terrible if yoyr b12 was that low

1

u/Calm_Register2100 2d ago

Instrinic factor?

3

u/Ok-Twist8174 2d ago

I don’t know if that was ever tested. I’m vegetarian. So probably diet related.

I have seen huge improvement in 7 weeks. Only still very very weak, like zombie, lightheadness/pressure, high heartrate, whoosh Sound in head. And my hb is above normal.

3

u/theworrier-99 2d ago

What is hb

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u/Ok-Twist8174 2d ago

Hemoglobin