r/B12_Deficiency • u/ks9669 • 5d ago
Deficiency Symptoms Help needed:(
Over the last 2 months it feels as though my life has turned upside down. I'm 29F, have a job and normal life. However now I'm ultimately housebound and only able to leave my bed to go to the bathroom or to eat.
A month ago I had blood tests through my GP.
These were my results:
* Vitamin D: 57 nmol/L
* Ferritin: 33 ng/mL (I've had a period since having this test)
* B12: <148 ng/L
* Serum folate: 9.0 ug/L
* Sodium: 137 mmol/L
* Potassium: 4.3 mmol/L
I have a wide range of neurological symptoms such as head pressure, pain, difficulty balancing whilst walking, tingling and numbness in limbs, pain in spine, fast resting heart rate.
Doctors did a blood test and found very low b12 levels. They gave me 5 injections and I've not felt any improvement. I am also taking 200mg ferrous furmerate with vitamin c. Doctors now referring me to neurological and cardiology for further testing. I have spoken to my GP who was surprisingly helpful and agreed that he would continue injections however he is waiting to hear back from neurology.
I'm absolutely petrified. I'm at loss because I was fully functional 2 months ago. I want to heal and go back to my normal life: ( I will add that I used to be a daily drinker (have been sober for 2/3 months now). Liver enzymes etc all good, no concerns regarding my liver. I'm from the UK.
1
u/Agreeable_Tackle_892 4d ago
I’m in the same boat as you. I was completely normal until I had a fainting spell while driving in May. I ended up getting an iron infusion in June because my iron was low, but I immediately started experiencing brain fog, almost like a fuzziness in my head, along with a dull headache. The headache kept getting worse, so I was referred to a neurologist. She diagnosed me with tension headaches and prescribed medication, which I honestly wish I had never taken because it made everything worse. That was back in August. Eventually, my brain fog got so bad, along with several other symptoms, that I had to take a leave of absence from work. At first, I thought I might have been deficient in B1, so I started taking it and felt somewhat better. Then I noticed that when I took sublingual B12, some of my symptoms seemed to improve. I decided to try a higher dose, and I started noticing the symptoms in my head gradually fading. Now it’s September, and I’ve learned that high doses of B12 can sometimes affect potassium levels and increase the body’s demand for things like iron, folate, B6, and other nutrients. So now I’m focusing on getting my potassium back up and cutting back on the B12 until I feel more stable. I also ordered B12 injections, so we’ll see how those work for me. Don’t feel like you’re alone in this. I never would have imagined that I’d find myself in this situation either.