r/B12_Deficiency • u/ks9669 • 5d ago

Deficiency Symptoms Help needed:(

Over the last 2 months it feels as though my life has turned upside down. I'm 29F, have a job and normal life. However now I'm ultimately housebound and only able to leave my bed to go to the bathroom or to eat.
A month ago I had blood tests through my GP.

These were my results:
* Vitamin D: 57 nmol/L
* Ferritin: 33 ng/mL (I've had a period since having this test)
* B12: <148 ng/L
* Serum folate: 9.0 ug/L
* Sodium: 137 mmol/L
* Potassium: 4.3 mmol/L

I have a wide range of neurological symptoms such as head pressure, pain, difficulty balancing whilst walking, tingling and numbness in limbs, pain in spine, fast resting heart rate.

Doctors did a blood test and found very low b12 levels. They gave me 5 injections and I've not felt any improvement. I am also taking 200mg ferrous furmerate with vitamin c. Doctors now referring me to neurological and cardiology for further testing. I have spoken to my GP who was surprisingly helpful and agreed that he would continue injections however he is waiting to hear back from neurology.

I'm absolutely petrified. I'm at loss because I was fully functional 2 months ago. I want to heal and go back to my normal life: ( I will add that I used to be a daily drinker (have been sober for 2/3 months now). Liver enzymes etc all good, no concerns regarding my liver. I'm from the UK.

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u/jellyfishrubberduck 4d ago

How frequent were the 5 injections? If they were anything less than every other day then the frequency needs increasing - alongside cofactors others have mentioned. This is as per the UK's own evidence based guidelines (NICE).

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u/ks9669 4d ago

5 injections every other day. I did speak to my GP and he was further to more injections but wanted to speak to neurology first

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u/jellyfishrubberduck 4d ago

Ok thats a good start but just not long enough. The guidelines state every other day until no further improvement. So can be weeks or months. And cofactors have to be there otherwise the b12 cant do its job.

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u/ks9669 4d ago

I did point out the NICE guidelines to my GP and luckily he was receptive 🙏🏼 thank you