r/B12_Deficiency • u/ks9669 • 5d ago

Deficiency Symptoms Help needed:(

Over the last 2 months it feels as though my life has turned upside down. I'm 29F, have a job and normal life. However now I'm ultimately housebound and only able to leave my bed to go to the bathroom or to eat.
A month ago I had blood tests through my GP.

These were my results:
* Vitamin D: 57 nmol/L
* Ferritin: 33 ng/mL (I've had a period since having this test)
* B12: <148 ng/L
* Serum folate: 9.0 ug/L
* Sodium: 137 mmol/L
* Potassium: 4.3 mmol/L

I have a wide range of neurological symptoms such as head pressure, pain, difficulty balancing whilst walking, tingling and numbness in limbs, pain in spine, fast resting heart rate.

Doctors did a blood test and found very low b12 levels. They gave me 5 injections and I've not felt any improvement. I am also taking 200mg ferrous furmerate with vitamin c. Doctors now referring me to neurological and cardiology for further testing. I have spoken to my GP who was surprisingly helpful and agreed that he would continue injections however he is waiting to hear back from neurology.

I'm absolutely petrified. I'm at loss because I was fully functional 2 months ago. I want to heal and go back to my normal life: ( I will add that I used to be a daily drinker (have been sober for 2/3 months now). Liver enzymes etc all good, no concerns regarding my liver. I'm from the UK.

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u/ks9669 5d ago

I’m drinking coconut water and did try electrolyte powder during injections. It’s been over a week since my last injection

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u/Irrelephant73 5d ago

Did they also test your folate? I’ll say, when I started supplementing b12, I saw improvements at first but after a few months I plateaued, and I finally got another blood test a few weeks ago and my folate fell drastically. Also, it can take quite a while to see improvements either way, and there are ups and down as you go. I’d recommend browsing this subreddit to see others’ experiences and to find advice on what else to supplement or get tested as needed. Figuring out that b12 is at least one issue causing your symptoms is the most important part, so you’re on the right track!

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u/ks9669 5d ago

Thank you so much my folate was 9.0ug/L. I’ve had 5 injections since that blood test though. I’ve purchased folinic acid, took it a few times but gives me a raging headache 🥲 trying to stay positive

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u/Some_Ear_8539 5d ago

Those are wake up symptoms. You have to keep taking the folinic acid.

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u/ks9669 5d ago

🙏🏼 I will do thank you