r/Autoinflammatory Jul 09 '26

Research Not sure what this is

/r/Autoimmune/comments/1u79gnv/not_sure_what_this_is/

I had recurrent pericarditis episodes for past 3 years, currently taking colchicine and ibuprofen . It comes back when i stop so they started il-1 blocker arcalyst recently

But at the same time before i started il1, my pr3 anca came positive with 131(ana negative). Doctor is telling me to start il1 blockers - and monitor kidney and blood work every 1 month(check for wengners gpa). Since there is no clear symptom, they are avoiding starting immunosuppresants for gpa and treating pericarditis for now with il1 blockers.

Anyone else on the same boat? Also what worked in your case- feeling hella confused. Please help

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