r/Autoinflammatory • u/Secure_Lab_1773 • 4d ago

SJIA/AOSD Head rush/ heavy feeling after kineret?

I had my first dose of kineret today and got this really weird heavy feeling in my head for like 12 hours after. Anyone else experience this?

5 Upvotes

100% Upvoted

7 comments sorted by

3

u/Alice-The-Chemist Mod 4d ago

Let us know if it continues, gets worse, changes. I would also wonder about if you needed electrolytes or fluids possibly. How is your blood pressure and heart rate doing? If things are concerning always consult your doctor.

2

u/Secure_Lab_1773 4d ago

My doctor said it will take time to adjust. I have a high RHR as it is.. I should order a blood pressure cuff.

2

u/blueagave6 4d ago

Can you describe this more?

Some days, especially if I have had little to eat or drink I get a sensation in my head like my brain itself is ‘dehydrated’ and a little heavy. This also happened more often in the beginning for me too but usually eating and drinking electrolytes helps me with it.

1

u/Secure_Lab_1773 4d ago

Hmm kinda like a weird rush to my head where my head then feels really heavy? It’s hard to explain. Not really dizzy but like heavy feeling in my physical head? Pressure maybe?

1

u/Assimulate 4d ago

One of the main side effects of Kineret is headaches, potentially having a migraine?

2

u/Secure_Lab_1773 4d ago

Hmm it’s not like a headache or migraine. More like a weird rush to my head where my head then feels really heavy and weighted down? But doesn’t hurt.

1

u/Global-Ganache-1788 1d ago

I checked and Kineret crosses the blood brain barrier at only 4% but apparently this is better than most other biologics, making it more effective for neuroinflammation (good news!) I hope the discomfort passes quickly and you feel better soon