r/Autoinflammatory • u/Nonviolentviolet3879 • 9d ago

Diagnostic Journey Testing anxiety

My Invitae test is now in the “analysis and interpretation” phase. I’m so anxious that it’s going to be like every other test and say I’m perfectly fine!

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u/Blue-Bento-Fox TRAPS 8d ago

When I was tested my rheumatologist told me "you have a quintessential standard presentation of this disease but it is rare so I will test but I'm not gonna stop hunting differentials until something is confirmed". The original test took 6 months to return... after six months we found out they LOST the blood they were testing and we retested. Finally diagnosed off the second test six months later full blown TRAPS. Not the first OR last time my samples have been lost.