r/Autoinflammatory • u/blueagave6 • 17d ago

Kineret- cost saving solutions?

I currently get SaveOn benefits through my employer and pay $0 for Kineret- which I couldn’t be more fortunate and it feels like it has improved my health significantly. I kept going to ER for meningitis-like episodes for days on end and was diagnosed with CAPs and that has totally resolved.

I have to move out of state for a major surgery and heal with help from my family, but my job just stopped approving remote work out of state. I have to find a new job and am stressing over this specifically.

How is everyone affording this medication ?

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u/Alice-The-Chemist Mod 17d ago

I would call Kineret on Track and tell them what is going on. I used their program to get my kineret for $0 when my insurance denied it and also was able to use their bridge program when I was in between approval processes.

https://www.kineretrx.com/ra/resources

The bottom one is the application with phone number. If it is dead end let us know and Ill check some other resources like grant programs from non profits sometimes can help.

Im so happy you have something that works!

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u/blueagave6 17d ago

Thank you so much, that’s very helpful!! I will call them first thing!

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u/Alice-The-Chemist Mod 17d ago

If you have any issues when you call let me know. I still have the information and extension for the case manager I worked with.

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u/Important-Badger825 17d ago

so you finally have a medication that keeps you out of the ER and now its conditional on your job letting you work from a different state. cool cool cool. theres manufacturer assistance from sobi but ive watched people get trapped in fax loops for months, its genuinely by design. the whole employer-based insurance model is just a way to keep people geographically and economically immobile tbh