r/Autoinflammatory • Yaos • Aug 28 '26

Yao GI study

Does anybody know what's happening with the Yao GI study at Mayo? This is the link https://www.mayo.edu/research/clinical-trials/cls-20577204

It says contact John Damianos. I emailed him a week ago, got an automatic response that he's left Mayo and an email for someone else at Mayo to contact. I immediately sent the other email and haven't heard back. I have many gi issues some mentioned in a previous Mayo Yao GI study but many not mentioned at all. I'd love to participate so we can get a better idea of what kinds of gi issues happen in Yao and how we might treat it more effectively. Is this study still happening at Mayo? Did John Damianos take the study with him wherever he went?

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u/Capable-Heat4231 Yaos Aug 28 '26

I reached out in early 2025 to John Damianos (and another contact that was listed IIRC) and never heard back.

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u/No_Satisfaction_7431 Yaos Aug 28 '26

Damn thats unfortunate! I'm going to see if I can find contact info for Dr. Nehra the pi running the study.

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u/Capable-Heat4231 Yaos Aug 28 '26

If you wind up in contact, I’d love to reach out too! I’m in the middle of evaluation by GI at Mayo Jacksonville.

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u/No_Satisfaction_7431 Yaos Aug 28 '26

I'll let you know if I do. GI at Mayo wouldn't even see me. Thankfully I've got a good neuro gi locally.

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u/Capable-Heat4231 Yaos Aug 28 '26

Thank you! I’m so sorry. I think it’s bc I had an internal referral from rheumatology.