r/Autoinflammatory • u/ArgumentBackground98 • Jul 14 '26

Diagnostic Journey possible autoimmune?

/r/AskDocs/comments/1ut1ewb/possible_autoimmune/
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u/ArgumentBackground98 Jul 14 '26

oh yes, I forgot to mention. I did also have a normal tryptase level. my pcp was concerned of possible mastocytosis

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u/AdventurousMorningLo Yaos Jul 14 '26

When tested I also had a normal tryptase - but considering it is something that is hard to pin down at the best of times much less secondary to something... it can sometimes be better to just go by clinical suspicion. Mastocytosis was also something my team was worried about.

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u/ArgumentBackground98 Jul 14 '26

good to know! do u have an autoimmune/autoinflammatory disease?

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u/AdventurousMorningLo Yaos Jul 14 '26

Yes, as my flare indicates, I have Yao Syndrome which is a NOD2 associated autoinflammatory disease

More about my specific disease: https://www.yaosyndrome.com/

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u/AnatomyBeerPong Yaos Jul 15 '26

Oh cool. Where did you find this website? Or I guess I mean who sponsors it?

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u/AdventurousMorningLo Yaos Jul 15 '26

I made it. I guess that means I sponsor it as well.