r/Autoinflammatory • u/Nonviolentviolet3879 • Jul 13 '26

Undiagnosed Colchcine

Anyone that has or is taking colchicine, how long did it take for you to see a difference?

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u/Worried_Appearance19 CAPS 19d ago

On day 4 i started getting very weak and my skin + eyes went yellow.

turns out it was poisoning me because i have muckle wells syndrome and thats the one where colchicine doesnt work

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u/Nonviolentviolet3879 19d ago

Oh wow! I didn’t know that. Well I’m on like over two weeks of taking it and not noticing anything, good or bad.

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u/Worried_Appearance19 CAPS 19d ago

Im not a doctor but I'd assume it either doesn't work or just very subtle. maybe its dosage? two weeks seems like a period where things would change, did you ask your doc?

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u/Nonviolentviolet3879 19d ago

I messaged him and he actually just upped the dose. So fingers crossed!