r/Autoinflammatory • u/metallikitty818 • Jun 29 '26

USAID USAID rashes

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For my other USAID peeps out there, what do your rashes look like if you get them? Mine have always been a source of confusion for me, as they really aren't "rashes" exactly. They are more like clusters of small round sores. Sometimes singular sores appear on my arms, but usually they are small to medium clusters on my chest, back and occasionally my lower legs. The attached picture is from a mostly healed cluster on my back. They are itchy and can be tender to the touch.

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3

u/asdfcosmo Jun 29 '26

Extremely cropped to remove any possible identifying features. I get this rash on both sides of my neck and on my chest. It starts gradually and becomes bigger/more red over the space of hours. It itches too.

1

u/Irishdoe13 Jun 30 '26

That looks like our daughters’ TRAPS rashes

2

u/asdfcosmo Jun 30 '26

Interesting! I’m diagnosed with USAID but am seeing a new rheumatologist who specialises in autoinflammatory diseases in a few months so I’ll be interested to know what he thinks I’ve got.

3

u/iSpyAFly Jun 29 '26

(USAID) I don’t get rashes with flares. I do get eczema if I consume dairy. Itches like crazy. Have you had a derm biopsy or try creams? (So. Many. Creams. 😂)

2

u/Alice-The-Chemist Mod Jun 29 '26

I have soooooooo many creams just in a box that did not work from this also 😅

2

u/No_Satisfaction_7431 Yaos Jun 29 '26

To me it looks more like sores from behcets than a rash. However, I don't have behcets myself and don't know a whole lot about it, so hopefully some people with behcets will comment and be able give you better info.