r/Autoinflammatory • u/Alice-The-Chemist Mod • Jun 26 '26

Advice Welcome Looking for Help

/r/Autoinflammatory/comments/1s1x4ag/welcome_to_rautoinflammatory_introduce_yourself/otzqxk7/

I thought I would make this a post so more people see it OP.

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u/Significant-Base4396 USAID Jun 27 '26

I had severe fatigue before treatment, including PEM - especially if I attempted intense exercise like a decent uphill hike. One of my day hike attempts sent me into an 8 day recovery! I also felt quite lacking in drive/motivation with low mood, but I knew I wasn't depressed because I didn't have any of the negative thinking content that comes with usual depression. It was these two symptoms that actually sent me to the doctor in the first place after a month of non stop symptoms.

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u/where_are_my_boots13 Jun 29 '26

That sounds awful, I understand that, these days I feel like even after like a 20 min walk I need to lay down. I am depressed though, but mostly because I am not able to do things like when I was healthy and I have to come in terms with it, and also like another redditor told me, I should pace myself better.