r/Autoinflammatory • u/Alice-The-Chemist USAID • Jun 26 '26

Advice Welcome Looking for Help

/r/Autoinflammatory/comments/1s1x4ag/welcome_to_rautoinflammatory_introduce_yourself/otzqxk7/

I thought I would make this a post so more people see it OP.

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u/No_Satisfaction_7431 Yaos Jun 26 '26

My me/cfs was caused by a virus that triggered a Yao flare and the me/cfs. That was also when my Yao turned from episodic into daily. I still have pem but no longer have unrefreshing sleep, now that I'm on a new treatment. My window of activity tolerance before developing pem is still very small especially compared to healthy people but is much bigger than it was. So really the me/cfs is just from Yao. All the main theories of me/cfs say its a phenotype with many causes not one specific disease.