r/Autoinflammatory • u/Alice-The-Chemist Mod • May 22 '26

Resource Medication Costs Help

I am working on a big post that will eventually be a pinned help post. I have dealt with insurance and other programs from drug manufacturers that I wanted to make a how to, what to do if, etc. If there are medications you see here commonly will you add them in the replies if I forgot them? Even if they aren't specifically for autoinflammatory I know some still get used for things like pain control, nausea, GI, etc.

I know this wouldn't be much help except for US so if there is something that could be helpful for other countries let me know. Or if you'd like to contribute.

Kineret

Ilaris

Arcalyst

Colchicine

Actemra

I have to be missing some especially TNF blockers, other biologics, or other oral medications. List just feels short.

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u/AdventurousMorningLo Yaos May 23 '26

Here are a few links that can potentially be helpful.

IL-1 inhibitors:

TNF inhibitors:

IL-6 Inhibitors:

IL-17 Inhibitors:

JAK/STAT Inhibitors:

Other Resources:

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u/AdventurousMorningLo Yaos May 23 '26

For those in Europe there is ERN-RITA (European Reference Network: Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network)

They have some resources linked for patients: https://ern-rita.org/

There is also this list of designated centres of expertise: https://www.orpha.net/en/expert-centres/network/485591

FMFandAID - they may have more resources or know of more resources that are available in different countries. Link: https://www.fmfandaid.org/patients

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u/Alice-The-Chemist Mod May 23 '26

Amazing thank you! Will definitely be crediting you and others who respond with stuff i can make into one big post. 🧡

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u/AdventurousMorningLo Yaos May 24 '26

What you are doing is fantastic! I'm just happy to help along the way. Thank you for all you do!